More About Merrick

 
I know it’s dangerous for me to write without having my coffee, so I’ll try and make this quick. One day soon, I promise to write about something other than Merrick’s head. But for now, here’s what I got: Merrick’s CAT scan went fine. He miraculously stayed asleep during the whole thing, so he didn’t have to be sedated, which was why I was dreading it so much in the first place. That said, the sight of my tiny baby boy inside of that whirling round machine didn’t exactly calm me down. But hey, that’s cake walk compared to what he’ll probably be going through in just a few months.
 
Caleb talked to our pediatrician Monday to get all our ducks in a row for the CAT scan–it seems I was misled (okay, I blanked) last week when the doctor called us and told us there was only one suture closed–apparently, there are two: the sagittal (?) which goes up the middle of the skull, is definitely fused, and possibly one of the left sutures that I don’t know the name of because I blanked again when Caleb was telling me about it. We’ve been able to feel a ridgeline in the center of his skull since the day he was born, and the back of his head has always been kinda bumpy.
 
I wasn’t really surprised that there might be 2; it would make for a more complicated surgery, and as much as I hate even the thought of that, I hope we have it done soon. I’ve heard that the younger the kid, the more workable the skull. And I’d rather Merrick have surgery than wind up with eyesight problems, developmental delays, or a face that looks like it was run over by a mack truck. I know kids can be cruel–the nicknames "Klingon" and "Hammerhead" have already crossed my mind, so I figure it’s either major surgery now or major therapy later. We still haven’t heard back from the doctor about our appointment with the neurosurgeon, but we are staying on them and they are staying on the hospital to get it scheduled.
 
People ask me "How are you holding up? God, I can’t even imagine what you must be feeling right now! How in the world will you handle it all?" And truthfully, I don’t know. I bet 5 years from now when everything’s all said and done, I still won’t really know. My son has a condition that I can’t pronounce correctly without having a seizure. I think this is one of those times where you just shut your eyes, hold on tight and come out on the other side. It will all work out.
 
Besides, Merrick’s a tough little guy. He’s been bulking up. He’s totally got this.
 
And nothing says bad ass like a baby in a helmet.
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About Toni

Mom. Wife. Artist. I take care of the kids and pretend to clean sometimes. I can cook spagetti and I have never been arrested. View all posts by Toni

5 responses to “More About Merrick

  • Bev

    It sounds to me like you and Caleb are right on top of things and being the best advocates for Merrick.  And it also sounds like you have the absolute right attitude about this.  Get it done and over with and get on with Merrick’s life.  And taking things one day at a time is about all anyone can do.  My friends’ son, who had to wear a helmet for quite a while, was the absolute cutest with his helmet on.  His Momma said he rarely ever fussed about it and he took it like a champ.  They even decorated it like the helmet of their college alma mater….so it made a definite statement.
     
    Thanks for keeping your blog friends posted Toni.  We do care. 
     
    Hugs and prayers coming your way.
     
    BBB

  • Tiffany

    You are so right girl… it WILL all work out and you will eventually be looking back and thinking that it went by too quick.  At least I did about Blair’s 7 week hospital stay and my 2 month couch stay!  I can’t believe she’s already been home over a month now!
     
    I will continue to pray for little Merrick and I know he will be the little trooper through all of this!  Just take deep breaths and one day at a time girl!  I know I will probably be a basket case for Blair’s surgery when she’s older as well… :)  You (and little man) will be fine!  I’m here for ya girl!
     
    Hugs – Tiff

  • barnyardmama

    Hey now, Merrick is going to be awesome–I just know it.  One day, I swear, you’ll look back on this and it will just be a blip in the wonderous life that is Merrick’s.  Besides, scars are cool and you know it.
     
    KM

  • barnyardmama

    Random thought: the guy who runs CT scans at aour local hospital said that there’s no reason to sedate anyone under the age of two.  Rather, he said, he prefers to have parents hold their children still.  Kind of weird holding you child down, but it beats sedation in my book.  I just sing to Charlie or let him drink a bottle and he usually doesn’t mind at all.
     
    KM

  • Bev

    Just cruising by to check on ya’ll.  I hope all is well!!
     
    Love ya!
     
    BBB

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